Baar/Walterswil,18.03.2018

Noémie's Hope Benefit Concert

16th Noémie's Hope Benefit Concert
Saturday, 21 April 2018 at 14:00
Baarburg Theatre, ISZL, Zug Campus

The Lordet family invites you to the 16th edition of Noémie’s Hope Benefit concert.


Since 2003, Adeline and Francois Lordet have organised a Benefit Concert in memory of their baby daughter Noémie, who died at seven months of age from Krabbe’s Disease. Krabbe's Disease is a very rare form of Leukodystrophy. Leukodystrophies affect the brain, spinal cord and peripheral nerves, and for many types of the disorder, there is no cure. The Lordets have established this Benefit Concert to raise money to support the European Leukodystrophy Association, as well as La Fondation Theodora.

The European Leukodystrophy Association (ELA) uses donations for ongoing research into these most painful and debilitating disorders, and also supports families afflicted with this disease. The cost of treatment is very high and the suffering born by families is incalculable. The ELA helps these families by defraying a part of the treatment cost and by providing counselling and emotional support. www.ela-asso.com.

In November 2009, the ELA association and Zinedine Zidane, its emblematic ambassador, were proud to announce a world premiere: the disease progression has been stopped in two children treated by a gene therapy; the trial has been conducted by Dr. Nathalie Cartier and Pr. Patrick Aubourg from the Saint-Vincent de-Paul hospital in Paris. The children are doing well, which is unexpected for a disease destroying in a few months the brain of a child previously healthy. For more information: http://www.ela-asso.com/?q=node/6373.

La Fondation Théodora is a group of trained professional artists who perform as "Clown Doctors" within children's wards of participating hospitals. The "Clowns" do their work in 8 countries, and appear in over 120 hospitals, visiting sick children and bringing them entertainment and joy, each week. www.theodora.org

Since August 2012, the Lordet family has offered Noémie’s Hope as a Community and Service Activity at the Hünenberg Campus. Their crêpe sales have become famous and an anticipated event every month. Thanks to the success rate, they have been able to buy birthday gifts for Leukodystrophic children of Switzerland and will continue to do so.

We are looking forward to welcoming you for an afternoon filled with music and entertainment in the Baarburg Theatre at the Zug Campus.